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This garden is for Jon Tarrant-Heckford who suffers from Sanfilippo Syndrome an incurable metabolic disorder that blocks the breakdown of complex sugars in the body, causing them to build up and destroy brain cells, leaving children unable to walk, talk or swallow. As the condition is terminal, Lorraine & Steve have been told by Great Ormond Street Hospital that Jon is very unlikely to reach his teenage years.The land this is on has been provided by the landlords that own the shop Jons mother runs.This would mean Jon could have a safe place to play with friends and allow his mother some limited but important respite and to enjoy the limited time she and her husband Steve can spend with Jon.
Please vote for Jon,thank you

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1632 votes


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